“The Crohn’s is probably enough.”
A kind and sympathetic nurse conversed with me in (a semi truck)* lithotripsy procedure while my doctor figured out the best way to blast my sneaky large kidney stones. This nurse was right. The Crohn’s disease is probably enough. The extra specialists that I have added over the years sometimes feel like too much. The Crohn’s makes me prone to lung problems. The Crohn’s makes me prone to kidney stones. The Crohn’s depletes me physically yet somehow continues to recharge me emotionally and spiritually.
The Crohn’s also makes me prone to seeing the raw beauty amidst the unfair pain. The Crohn’s makes me more prone to routine feelings of overwhelming love and gratefulness for my concrete support system. The Crohn’s makes me prone to testing my faith and wearing my emotions on the outside, along with my bag. The Crohn’s makes me prone to being authentically myself because it’s too exhausting on my already-tired body to fake my way through life.
One of my boys worried about the medicine they would give me for my lithotripsy procedure. A few weeks ago, he wanted to learn how to do the moonwalk. We watched videos, listened to songs and talked about Michael Jackson’s life. Which also lead to a conversation on how he died. And so a week later, my son asked this question after he made this connection all by himself (kids are so damn smart)
“Mama, will you get the same medicine Michael Jackson got?”
Ahhhh. I know this boy’s thinking all too well. An eight year old boy shouldn’t have to worry about his mama dying in a kidney stone procedure. We talked and I told him, “I will only be getting a little bit of medicine to help it not hurt. There will be nurses and a doctor to take care of me. Michael Jackson took way too much medicine.” I asked him if he was still worried a few days later. “No, cause you’re just getting a little medicine…for thirty minutes.”
I’ve had ongoing days and weeks and months of kidney pain. Some days are way better than others. On the hard days, it’s been me telling my boys too many times to count, “I can’t play right now. My back is hurting too badly.” I’m hopeful that I will get relief soon though I have unexpectedly acquired a pretty high tolerance for pain. Thankfully, I possess a stubborn, competitive spirit that keeps fighting back when one of the many side effects of my disease challenges me.
I’m convinced that yesterday my strong and worried mind kept me alert during my procedure, despite the valium, versed and fentynl, because I wanted to reassure my deep thinking and feeling son. Particularly, I didn’t want to die on a day that I had made the worst gluten-free waffles for breakfast. The. Worst. Though due to the nasty waffles, the breakfast dance party was pretty awesome.
After my procedure, all three of my boys came up to my room to check on me when they got home. They get me. Every single time. They have an abnormal amount of compassion for their ages, most likely learned through watching their daddy lovingly take care of me when I’m wounded. One of them brought me water and a pain pill. One of them asked if I would be able to come down and watch a movie and saved me a perfect spot, right next to him. He kept making sure he knew which side of me was hurting. The sweetest.
I woke up feeling pretty good today. I’m a little sore but it’s totally bearable without the obnoxious pain meds. I have to do these exercises where I drink a lot of water and then lay on an incline to help get the broken kidney stones out. My dog wanted to maul my hair, lick my face and then finally gave up and decided to lay down next to me. Moral support-ish. I’m not sure if his presence will help move the stones but it always helps my spirit to have a friend willing to hang out with me, right side up or upside down.
As always, thanks for reading. Thanks for sending your prayers for my spirit to stay positive and hopeful. Thanks for supporting me and my family in too many ways to count. Thanks for caring, for dinner, for worrying, for checking in, or for talking with my husband or helping with our boys.
*Yes. Seriously. Who knew? Not me. I was raised up in my wheelchair onto a traveling semi-truck. The truck is cost effective in that it goes around from location to location doing lithotripsy procedures out back. Literally, out back, in a semi-truck. Crazy. My husband laughed when we arrived in the office and the nurse told us. Then, he didn’t believe her so I asked him to go take a picture of the truck. Here is living proof that you can pretty much do anything out of a truck. Anything. Buy tacos. Zap kidney stones. The mobile truck industry is strong. Just set your mind to it. Get going.